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Promoting Parent Partnership in Developmentally Supportive Care for Infants in the Pediatric Cardiac Intensive Care
Janie Klug1, Christine Hall, Emily A Delaplane
1Nemours Cardiac Center (Mss Klug and Hall and Drs Hehir and Sood), Department of Patient and Family Services (Ms Delaplane), Department of Child Life (Ms Meehan), Department of Therapeutic and Rehabilitative Services (Mss Negrin, Russell, and Hamilton and Dr Mieczkowski), and Division of Behavioral Health (Dr Sood), Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware; and Department of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania (Drs Hehir and Sood).
Insights
A bedside visual tool improved parent involvement in infant care after cardiac surgery. This intervention supports parents, enhancing their partnership in developmentally supportive care for critically ill infants.
Area of Science:
- Pediatric Cardiac Surgery
- Neonatal Intensive Care
- Parent-Infant Bonding
Background:
- Parental unpreparedness and distress are common following infant cardiac surgery due to limited care opportunities.
- Effective parental involvement is crucial for infant well-being and family adaptation.
Purpose of the Study:
- To develop and evaluate a bedside visual tool designed to foster parent partnership in developmentally supportive care for infants undergoing cardiac surgery.
- To enhance parental engagement in the care of critically ill infants post-cardiac surgery.
Main Methods:
- The Care Partnership Pyramid, a multidisciplinary-developed visual tool, was tested over three Plan-Do-Study-Act (PDSA) cycles.
- Parental participation in developmentally supportive care was assessed via nursing documentation, with staff perceptions gathered through surveys.
Main Results:
- Initial cycles showed no statistical significance, but subsequent PDSA cycles demonstrated increased parental involvement in rounds, care routines, and environmental comfort.
- Staff feedback led to tool integration into daily checklists, improving its visibility and utility.
Conclusions:
- A bedside visual tool can effectively increase parent partnership in the care of infants post-cardiac surgery.
- Further research is warranted to explore the impact of such interventions on parent preparedness, family well-being, and infant outcomes.
Background:
Limited opportunities for parents to care for their critically ill infant after cardiac surgery can lead to parental unpreparedness and distress.
Purpose:
This project aimed to create and test a bedside visual tool to increase parent partnership in developmentally supportive infant care after cardiac surgery.
Methods:
The Care Partnership Pyramid was created by a multidisciplinary team and incorporated feedback from nurses and parents. Three Plan-Do-Study-Act (PDSA) cycles tested its impact on parent partnership in care. Information about developmentally supportive care provided by parents during each 12-hour shift was extracted from nursing documentation. A staff survey evaluated perceptions of the tool and informed modifications.
Results:
Changes in parent partnership during PDSA 1 did not reach statistical significance. Staff perceived that the tool was generally useful for the patient/family but was sometimes overlooked, prompting its inclusion in the daily goals checklist. For PDSA 2 and 3, parents were more often observed participating in rounds, asking appropriate questions, providing environmental comfort, assisting with the daily care routine, and changing diapers.
Implications For Practice:
Use of a bedside visual tool may lead to increased parent partnership in care for infants after cardiac surgery.
Implications For Research:
Future projects are needed to examine the impact of bedside care partnership interventions on parent preparedness, family well-being, and infant outcomes.
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