Promoting Parent Partnership in Developmentally Supportive Care for Infants in the Pediatric Cardiac Intensive Care

Janie Klug1, Christine Hall, Emily A Delaplane

  • 1Nemours Cardiac Center (Mss Klug and Hall and Drs Hehir and Sood), Department of Patient and Family Services (Ms Delaplane), Department of Child Life (Ms Meehan), Department of Therapeutic and Rehabilitative Services (Mss Negrin, Russell, and Hamilton and Dr Mieczkowski), and Division of Behavioral Health (Dr Sood), Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware; and Department of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania (Drs Hehir and Sood).

Insights

A bedside visual tool improved parent involvement in infant care after cardiac surgery. This intervention supports parents, enhancing their partnership in developmentally supportive care for critically ill infants.

Area of Science:

  • Pediatric Cardiac Surgery
  • Neonatal Intensive Care
  • Parent-Infant Bonding

Background:

  • Parental unpreparedness and distress are common following infant cardiac surgery due to limited care opportunities.
  • Effective parental involvement is crucial for infant well-being and family adaptation.

Purpose of the Study:

  • To develop and evaluate a bedside visual tool designed to foster parent partnership in developmentally supportive care for infants undergoing cardiac surgery.
  • To enhance parental engagement in the care of critically ill infants post-cardiac surgery.

Main Methods:

  • The Care Partnership Pyramid, a multidisciplinary-developed visual tool, was tested over three Plan-Do-Study-Act (PDSA) cycles.
  • Parental participation in developmentally supportive care was assessed via nursing documentation, with staff perceptions gathered through surveys.

Main Results:

  • Initial cycles showed no statistical significance, but subsequent PDSA cycles demonstrated increased parental involvement in rounds, care routines, and environmental comfort.
  • Staff feedback led to tool integration into daily checklists, improving its visibility and utility.

Conclusions:

  • A bedside visual tool can effectively increase parent partnership in the care of infants post-cardiac surgery.
  • Further research is warranted to explore the impact of such interventions on parent preparedness, family well-being, and infant outcomes.
Abstract

Related Concept Videos

Cardiomyopathy V: Interprofessional Care01:29

Cardiomyopathy V: Interprofessional Care

Managing cardiomyopathy involves addressing underlying or precipitating causes, treating heart failure with medications, and implementing dietary changes and a balanced exercise and rest regimen.Lifestyle ModificationsCardiomyopathy patients should adopt a low-sodium diet to reduce fluid retention and manage heart failure. A personalized exercise and rest plan helps maintain physical fitness without overstraining the heart. Avoiding alcohol and tobacco is essential to prevent further damage to...
237
Parental Care00:55

Parental Care

Many animals exhibit parental care behavior, including feeding, grooming, and protecting young offspring. Parental care is universal in mammals and birds, which often have young that are born relatively helpless. Several species of insects and fish, as well as some amphibians, also care for their young.
12.5K
Interdisciplinary Care: The Health Care Team-I01:21

Interdisciplinary Care: The Health Care Team-I

An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care.
Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution...
2.4K
Interdisciplinary Care: The Health Care Team-II01:18

Interdisciplinary Care: The Health Care Team-II

An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care. Here are a few more healthcare professionals.
Physical Therapist
A physical therapist (PT) aims to restore function or prevent additional impairment in a patient following an injury or disease. Massage, heat, cold, water, sonar waves, exercises, and electrical stimulation are some treatments used by PTs to treat...
2.1K
Coronary Artery Disease V: Interprofessional Care01:27

Coronary Artery Disease V: Interprofessional Care

Interprofessional care for coronary artery disease includes pharmacological therapy and revascularization procedures.Pharmacological therapy for Coronary Artery Disease (CAD) aims to manage symptoms, prevent complications, and improve patient outcomes through various classes of medications:Antiplatelet Agents:Aspirin and Clopidogrel: These medications inhibit platelet aggregation, preventing blood clots, which is crucial for avoiding heart attacks and strokes. Doctors often prescribe these...
182
Acute Coronary Syndrome IV: Interprofessional Care01:28

Acute Coronary Syndrome IV: Interprofessional Care

IntroductionThe management of Acute Coronary Syndrome (ACS) aims to minimize myocardial damage, preserve myocardial function, and prevent complications.Initial ManagementInpatient management involves continuous cardiac monitoring, preferably in an ICU, focusing on blood pressure, serum sodium, potassium, and creatinine levels, and urine output. Ongoing pharmacologic management is crucial for stabilizing the patient.Supplemental Oxygen: Administer supplemental oxygen if oxygen saturation is...
172