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The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Angela Lorts1,2, Lauren Smyth2, Robert J Gajarski3

  • 1From the Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio.

ASAIO Journal (American Society for Artificial Internal Organs : 1992)
|April 1, 2020
PubMed

Insights

Collaboration is key to improving outcomes for pediatric heart failure patients. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) was created to share knowledge and advance care for these rare conditions.

Area of Science:

  • Pediatric Cardiology
  • Quality Improvement Science
  • Health Outcomes Research

Background:

  • Pediatric patients with congenital heart disease and end-stage heart failure have complex needs.
  • Rarity and varied causes of heart failure in children necessitate inter-institutional collaboration.
  • Existing care gaps hinder optimal outcomes for this vulnerable population.

Purpose of the Study:

  • To introduce the Advanced Cardiac Therapies Improving Outcomes Network (ACTION), a collaborative quality improvement science network.
  • To outline the mission, vision, and organizational structure of ACTION.
  • To describe the utility of real-world data for regulatory purposes within the network.

Main Methods:

  • Establishment of a collaborative quality improvement science network (ACTION).
  • Focus on sharing learnings between institutions and disciplines.
  • Utilization of real-world data for analysis and improvement.

Main Results:

  • ACTION network established to foster collaboration and accelerate discovery.
  • Focus on addressing existing gaps in pediatric end-stage heart failure care.
  • Framework for sharing data and best practices across pediatric centers.

Conclusions:

  • The ACTION network aims to improve outcomes for pediatric patients with congenital heart disease and end-stage heart failure.
  • Collaboration and data sharing are crucial for advancing treatment strategies.
  • The network will leverage quality improvement science and real-world data to enhance patient care.

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