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A nurses' ethical commitment to people with intellectual and developmental disabilities.

Kathleen Fisher1, Catherine Robichaux2, Jeanie Sauerland3

  • 1Drexel University, USA.

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Healthcare professionals have knowledge gaps regarding intellectual or developmental disabilities (IDD). Addressing these deficits is crucial for equitable, ethical care across the lifespan for people with IDD.

Keywords:
Autism spectrum disorderdevelopmental disabilityethicsintellectual disabilitynurses

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Area of Science:

  • Healthcare
  • Nursing Education
  • Disability Studies

Background:

  • Approximately 1%-3% of the global population lives with intellectual or developmental disabilities (IDD).
  • People with IDD face significant health inequities and societal barriers, often exacerbated by stigma.
  • Healthcare providers frequently lack adequate knowledge about IDD, contributing to disparities in care.

Purpose of the Study:

  • To explore knowledge deficits among healthcare professionals concerning the needs of people with IDD.
  • To identify factors contributing to these knowledge deficits in healthcare.
  • To examine ethical considerations in providing comprehensive care for individuals with IDD.

Main Methods:

  • Literature review and ethical analysis.
  • Exploration of existing educational programs and their impact.
  • Examination of ethical frameworks related to autonomy, beneficence, and vulnerability.

Main Results:

  • Significant knowledge deficits exist among healthcare professionals regarding IDD.
  • Lack of specialized nursing education programs contributes to these deficits.
  • Ethical dilemmas arise from balancing protection and autonomy for people with IDD.

Conclusions:

  • A well-informed model of nursing care is needed for people with IDD.
  • Ethical commitments must address victimization, access to care, decision-making, and end-of-life care for this population.
  • Enhanced education is essential to improve healthcare outcomes for individuals with IDD.