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Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
Aline C Stolk-Vos1,2,3, Hamasa Kasigar4, Karlijn J Nijmeijer4
1Rotterdam Ophthalmic Institute, Schiedamse Vest 160, Rotterdam, 3011 BH, The Netherlands. a.stolk@eyehospital.nl.
Purpose:
Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.
Methods:
A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.
Results:
Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.
Conclusion:
The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.
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