National Heart Failure Registry, India: Design and methods

Area of Science:

• Cardiology
• Public Health
• Epidemiology

Background:

• Heart failure (HF) presents a significant global health challenge, particularly impacting resource-limited nations.
• Limited data exists on HF prevalence, management, and outcomes in low- and middle-income countries.
• India lacks nationally representative data on heart failure.

Purpose of the Study:

• To establish the first nationally representative heart failure registry in India.
• To gather comprehensive data on HF etiology, patient demographics, and clinical characteristics.
• To evaluate current treatment practices and guideline-directed therapy use in Indian HF patients.

Main Methods:

• The National Heart Failure Registry (NHFR) is a multicenter, hospital-based initiative.
• Enrolling over 10,000 patients with acute decompensated HF across 53 Indian centers (Jan-Dec 2019).
• Collecting baseline demographics, clinical, laboratory, and imaging data, alongside treatment details and outcomes (in-hospital to 1-year).

Main Results:

• Data collection is ongoing for the National Heart Failure Registry.
• The registry aims to capture detailed information on over 10,000 heart failure patients.
• Baseline data includes demographics, clinical status, diagnostics, and treatment strategies.

Conclusions:

• The NHFR is poised to be India's first comprehensive, nationally representative registry for heart failure.
• It will yield critical insights into the etiology, distribution, and management of HF within India.
• Findings will inform public health strategies and clinical practice guidelines for heart failure in the region.