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The Creation of a Tool to Measure Engagement in Patient-Oriented Research
Malori Keller1, Christopher Plishka2, Malcolm King3
1The Patient Engagement & Empowerment Platform lead at the Saskatchewan Centre for Patient-Oriented Research. Her work focuses on supporting the advancement of patient engagement and patient- and family-centred care in health research and health system improvement. She can be reached by e-mail at mkeller@hqc.sk.ca.
Abstract:
In 2017, the Saskatchewan Centre for Patient-Oriented Research (SCPOR) engaged patient and family advisors (PFAs) to review patient-oriented research grant proposals. The PFAs observed that the reviews would be less subjective if they were assessing the projects based on more rigorous criteria. Together the PFAs and SCPOR staff members developed a tool based on the Canadian Institutes of Health Research's Strategy for Patient-Oriented Research definition for patient-oriented research and the International Association for Public Participation's Spectrum of Public Participation. This article discusses the process of initiating a patient-identified project and co-creating the tool to indicate the level of patient-orientedness.
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