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An electronic health record-based strategy to recruit for a Patient Advisory Council for Research: Implications for
Nassira Bougrab1, Dadong Li2, Howard Trachtman1
1NYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.
Abstract:
In 2017, the NYU Clinical and Translational Science Institute's Recruitment and Retention Unit created a Patient Advisory Council for Research (PACR) to provide feedback on clinical trials and health research studies. We collaborated with our clinical research informatics team to generate a random sample of patients, based on the International Classification of Diseases, Tenth Revision codes and demographic factors, for invitation via the patient portal. This approach yielded in a group that was diverse with regard to age, race/ethnicity, sex, and health conditions. This report highlights the benefits and limitations of using an electronic health record-based strategy to identify and recruit members for a PACR.
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