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Tourette syndrome: impact on Canadian family functioning.
G B Hubka1, W A Fulton, G A Shady
1Department of Psychiatry, St. Boniface General Hospital, Winnipeg, Manitoba, Canada.
Neuroscience and Biobehavioral Reviews
|January 1, 1988
Summary
Tourette Syndrome (TS) significantly impacts family life, affecting daily activities and potentially leading to marital or substance use issues. Many families sought counseling, finding it helpful for managing TS challenges.
Area of Science:
- Neurology
- Psychiatry
- Family Studies
Background:
- Tourette Syndrome (TS) is a neurological disorder with potential impacts extending beyond the individual.
- Understanding the family's experience is crucial for comprehensive care and support.
Purpose of the Study:
- To evaluate the multifaceted impact of Tourette Syndrome on family dynamics and daily life.
- To assess the occurrence of marital and substance use issues following a TS diagnosis.
- To determine the utilization and perceived helpfulness of professional counseling among affected families.
Main Methods:
- A self-report survey was administered to over 200 Canadian families affected by Tourette Syndrome.
- Participants rated the interference of TS in daily activities.
- Data were collected on marital/substance use difficulties and counseling experiences.
Main Results:
- Tourette Syndrome was found to interfere with various aspects of family day-to-day activities.
- A notable proportion of families reported marital difficulties or substance use issues post-diagnosis.
- Professional counseling was sought by many TS patients and family members, with generally positive feedback on its helpfulness.
Conclusions:
- Tourette Syndrome presents significant challenges to family functioning.
- Addressing marital and substance use concerns is important in managing TS.
- Professional counseling is a valuable resource for families coping with Tourette Syndrome.