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#Cleftlip/Palate: What Is the World Talking About?

Alexandra S Hudson1,2, Alexander D Morzycki1,3, Regan Guilfoyle1,3

  • 1University of Alberta, Edmonton, Alberta, Canada.

The Cleft Palate-Craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association
|April 10, 2020
PubMed
Summary

Charities heavily influence cleft lip and palate discussions on Twitter, with most content being self-promotional. Educational cleft content often lacks accuracy, highlighting a need for improvement.

Keywords:
cleftcleft lipcleft palatesocial mediatwitter

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Area of Science:

  • Medical Social Media Analysis
  • Public Health Communication
  • Cleft Lip and Palate Research

Background:

  • Social media platforms are increasingly used to discuss medical and surgical topics.
  • Cleft lip and palate are common congenital birth defects globally.
  • No prior studies have analyzed Twitter discussions on cleft lip and palate.

Purpose of the Study:

  • To examine the nature of discussions surrounding cleft lip and palate on Twitter.
  • To identify key themes, author characteristics, and engagement metrics in cleft-related tweets.

Main Methods:

  • Tweets were collected using keywords such as 'cleft', 'cleft lip', 'cleft palate', and associated hashtags.
  • Analysis spanned eight months between 2017 and 2018.
  • Outcomes included tweet subject matter, author demographics, engagement, multimedia use, and accuracy.

Main Results:

  • 1222 tweets were analyzed, with #cleft being the most frequent hashtag (71%).
  • The United States and India were top tweeting countries; charities, hospitals, and physicians were primary authors.
  • Over 75% of tweets were self-promotional, with charity information and patient stories being common content.

Conclusions:

  • Charities are dominant voices in the cleft lip and palate Twitter community.
  • A significant portion of educational cleft content demonstrated low accuracy.
  • The hashtag #cleft is recommended for broader reach within the growing social media community.