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Paediatric oncology providers' perspectives on early integration of paediatric palliative care
Rima Saad1, Lina Badr Kurdahi2, Nuhad Yazbick-Dumit3
1Clinical Nurse Specialist, Children's Cancer Institute, American University of Beirut Medical Center, Lebanon.
Insights
Healthcare providers view paediatric palliative care (PPC) as end-of-life support, impacting its early integration. Effective PPC requires interdisciplinary collaboration and improved communication with children and families.
Area of Science:
- Pediatric Oncology
- Palliative Care
- Healthcare Provider Perceptions
Background:
- Healthcare providers' perceptions of palliative care significantly influence its early integration in pediatric cancer management.
- Understanding these perspectives is crucial for informed decision-making in pediatric palliative care (PPC).
Purpose of the Study:
- To explore the perceptions of pediatric oncology providers regarding the integration of early PPC.
- Focus on providers at the Children's Cancer Institute (CCI) in Lebanon.
Main Methods:
- Qualitative descriptive research design.
- Focus groups conducted in a leading pediatric oncology setting.
Main Results:
- Providers perceived PPC primarily as end-of-life pain relief and psychological support.
- Integration timing was linked to end-of-life, advanced disease, or treatment failure.
- Interdisciplinary collaboration and communication with patients/families were identified as critical but challenging aspects.
Conclusions:
- The study highlights healthcare providers' perceptions of early PPC in pediatric oncology in Lebanon.
- Emphasizes the importance of interdisciplinary collaboration and effective communication for optimal PPC management.
Background:
Healthcare providers' perceptions of palliative care in children with cancer influence care management, specifically that of its early integration. Thus, it is crucial to understand the perspectives of the providers on early integration of palliative care so that measures to create informed care decisions are based on reconciling their views.
Aims:
To explore the perceptions of paediatric oncology providers at the Children's Cancer Institute (CCI) in Lebanon regarding the integration of early paediatric palliative care (PPC) in the management of children with cancer.
Methods:
A qualitative descriptive research design with focus groups was used in a leading paediatric oncology setting.
Findings:
The thematic analysis yielded four themes: (1) healthcare providers understood palliative care as pain relief and psychological support mainly at the end of life; (2) the timing of integrating PPC is linked to end of life, advanced disease or treatment failure; (3) interdisciplinary collaboration is important for addressing patients' and families' needs effectively; and (4) communication with the child and family is one of the most difficult aspects of integrating PPC.
Conclusion:
This study demonstrated the perceptions of healthcare providers about early palliative care in paediatric oncology in Lebanon. It also highlighted the importance of interdisciplinary collaboration and effective communication with the child and family for better management of PPC.
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