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Summary
This summary is machine-generated.

Parents see benefits in accessing their hospitalized child's clinical notes for education and advocacy. However, challenges related to note content and communication must be addressed for successful implementation of OpenNotes.

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Area of Science:

  • Healthcare Informatics
  • Patient Engagement
  • Pediatric Healthcare

Background:

  • OpenNotes, a movement sharing clinical notes with patients, is adopted by 169 U.S. health systems.
  • Limited research exists on note sharing during pediatric hospitalizations and parental perspectives.

Purpose of the Study:

  • To explore parental perspectives on sharing inpatient clinical notes with parents of hospitalized children.
  • To identify potential benefits and challenges of this practice.

Main Methods:

  • A focus group was conducted with eight parents of children hospitalized at a Midwest children's hospital.
  • Qualitative analysis was used to identify themes regarding the sharing of daily inpatient notes.

Main Results:

  • Key benefits included enhanced family education, improved communication and continuity of care, and increased patient/family advocacy and empowerment.
  • Primary challenges involved concerns about note content, potential communication barriers, and negative impacts on families.

Conclusions:

  • Parents perceive significant benefits in accessing their child's inpatient notes, alongside identifiable challenges.
  • Consideration of healthcare professional impact is also crucial for successful implementation.