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Child and Caregiver Perspectives Towards Facial Appearance in Children With Microtia With or Without Craniofacial

Perry S Bradford1, Moriyike Akinosun1, Kirstie K Danielson2

  • 1University of Illinois at Chicago College of Medicine.

The Journal of Craniofacial Surgery
|April 21, 2020
PubMed

Insights

This study developed a new tool to assess how children and caregivers view facial appearance in craniofacial microsomia (CFM) and microtia. Incorporating these perspectives is crucial for surgical timing decisions.

Area of Science:

  • Plastic Surgery
  • Pediatric Psychology
  • Medical Device Development

Background:

  • Craniofacial microsomia (CFM) is a common congenital condition affecting facial symmetry.
  • Psychosocial well-being is vital for children with craniofacial differences.
  • Existing tools for evaluating patient/caregiver perspectives on microtia and CFM are limited.

Purpose of the Study:

  • Develop a patient and caregiver evaluation tool for facial appearance in microtia and CFM.
  • Compare child and caregiver perspectives on facial appearance in microtia with or without CFM.
  • Validate a new Likert scale questionnaire for clinical use.

Main Methods:

  • Prospective single-center study (2016-2017).
  • Developed 13-item (Microtia) and 27-item (CFM) 5-point Likert scale questionnaires.
  • Surveyed 25 patients (ages 7-20) with CFM and their caregivers.

Main Results:

  • A novel Likert scale tool was developed for assessing patient and caregiver perspectives.
  • The tool may aid in planning surgical timelines for microtia and CFM.
  • Pilot data suggests patient and caregiver input is vital for treatment decisions.

Conclusions:

  • The developed Likert scale is a potentially valuable clinical tool.
  • Patient and caregiver perspectives significantly influence treatment planning for craniofacial microsomia.
  • Incorporating all voices ensures optimal decision-making regarding surgical timing.

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