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Agreement between parents and physicians regarding clinical evaluation of patients with juvenile rheumatoid arthritis

I H Vandvik1, H M Høyeraal, S Larsen

  • 1Pediatric Division, Oslo Sanitetsforening Rheumatism Hospital, Norway.

Scandinavian Journal of Rheumatology
|January 1, 1988
PubMed

Insights

Parental self-report questionnaires show good reliability for assessing juvenile rheumatoid arthritis severity in children. This tool can aid in follow-up studies, though some limitations exist for joint-specific assessments.

Area of Science:

  • Pediatric Rheumatology
  • Clinical Assessment Tools

Background:

  • Juvenile rheumatoid arthritis (JRA) requires reliable methods for monitoring disease severity.
  • Parental input is valuable but its reliability in assessing JRA needs validation.

Purpose of the Study:

  • To evaluate the reliability of parent self-report questionnaires in assessing disease severity in children with JRA.
  • To compare parental assessments with physician evaluations.

Main Methods:

  • A self-report questionnaire was administered to parents of 50 children with JRA (minimum 6 months disease duration).
  • Parental assessments were compared with evaluations from two physicians.

Main Results:

  • Good agreement was found between parents and physicians on global disease severity, pain, morning stiffness, and daily activities.
  • Physicians reported higher scores for joint swelling and movement restriction compared to parents.

Conclusions:

  • Parental questionnaires offer a reliable method for follow-up studies in JRA, with some reservations.
  • The tool is useful for general disease assessment but may underestimate joint-specific issues.

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