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Patient-Reported Outcomes after Syndactyly Reconstruction.
Eugene Park1, Andrew Bi1, Erik C King1
1From the Division of Plastic Surgery, Northwestern University Feinberg School of Medicine; and the Divisions of Orthopedic Surgery and Plastic Surgery, Ann and Robert H. Lurie Children's Hospital of Chicago.
Plastic and Reconstructive Surgery
|April 26, 2020
Summary
Patient-reported outcomes after congenital hand syndactyly reconstruction show minor upper extremity function impairment. Developmental delay may worsen outcomes, necessitating discussion before surgery.
Area of Science:
- Orthopedics
- Pediatric Surgery
- Rehabilitation Medicine
Background:
- Limited research exists on patient-reported outcomes following congenital hand syndactyly reconstruction.
- Understanding patient perspectives is crucial for evidence-based discussions on surgical expectations.
Purpose of the Study:
- To evaluate patient-reported outcomes after surgical reconstruction for congenital hand syndactyly.
- To identify factors influencing outcomes, such as developmental delay.
Main Methods:
- A retrospective review of 124 patients who underwent congenital syndactyly reconstruction.
- Utilized Patient-Reported Outcomes Measurement Information System (PROMIS) questionnaires for outcome assessment.
- Parent-proxy questionnaires were used for younger children or those unable to self-report.
Main Results:
- 51 patients completed PROMIS surveys, yielding a 41.1% response rate.
- Average upper extremity function score was 41.8 ± 11.
- Patients with developmental delay showed significantly lower upper extremity function (23.8 ± 6.2) compared to those without (44.2 ± 10.2).
- Parent-proxy reports indicated higher pain interference than self-reports.
Conclusions:
- PROMIS is effective for assessing outcomes in syndactyly patients.
- Congenital hand syndactyly reconstruction generally results in minor upper extremity functional impairments.
- Health-related quality of life is comparable to the general population, but developmental delay warrants careful consideration due to potential impact on function.
