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Challenges to optimal rheumatology care: a patient-centered focus group study
J Dollinger1, C Neville1, C A Pineau2
1Centre for Outcome Research and Evaluation, Research Institute of the McGill University Health Centre, 5252 boul. de Maisonneuve Ouest, (3F.51), Montreal, QC, H4A 3S5, Canada.
Clinical Rheumatology
|April 26, 2020
Summary
Patients with rheumatic diseases need better information and support throughout their illness. Addressing healthcare access barriers and improving patient beliefs can optimize rheumatology care experiences.
Area of Science:
- Rheumatology
- Patient Experience
- Healthcare Access
Background:
- Optimal rheumatology care is crucial for managing chronic inflammatory diseases.
- Patient perspectives are vital for identifying gaps in care delivery.
Purpose of the Study:
- To assess challenges to optimal rheumatology care from the patient's viewpoint.
- To identify patient needs and barriers in rheumatology care.
Main Methods:
- Focus group study with adult patients suffering from rheumatic diseases.
- Thematic analysis of recorded focus group discussions to identify key themes.
Main Results:
- Three main themes emerged: patient needs for information and support, healthcare access barriers, and patient beliefs on care improvements.
- Participants highlighted the need for continuous support from diagnosis through the disease trajectory.
Conclusions:
- Patient-centered recommendations can improve rheumatology care experiences.
- Addressing identified barriers and support needs is key to optimizing rheumatology care for chronic inflammatory conditions.
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