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Published on: September 16, 2021
Autonomous decisions by couples in reproductive care
Amal Matar1, Anna T Höglund2, Pär Segerdahl1
1Centre for Research Ethics and Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22, Uppsala, Sweden.
Couple autonomy is crucial for making joint decisions about preconception expanded carrier screening (ECS). This approach ensures both partners communicate freely, negotiate differences, and reach a consensus without coercion, enhancing reproductive choices.
Area of Science:
- Reproductive genetics
- Bioethics
- Clinical psychology
Background:
- Preconception Expanded Carrier Screening (ECS) offers genetic testing to couples without known risks for hereditary diseases.
- The ethical basis for ECS lies in enhancing reproductive autonomy, traditionally viewed as individualistic.
- Clinical practice involves couples making joint decisions regarding preconception ECS.
Purpose of the Study:
- To understand autonomous decision-making by couples regarding preconception ECS.
- To explore couple decision-making within reproductive technologies.
- To provide insights for healthcare professionals in reproductive clinics.
Main Methods:
- Conceptualizing couple autonomy based on relational autonomy.
- Outlining features of couple autonomy: individual autonomy, communicative process, free expression of concerns, adequate negotiation time, consensus without coercion.
- Applying the concept of couple autonomy to clinical scenarios.
Main Results:
- Couple autonomy requires both partners to be individually autonomous and engage in open communication.
- Decision-making should allow for negotiation and consensus, free from manipulation or miscommunication.
- The concept was applied to various clinical situations involving reproductive technologies.
Conclusions:
- Couple autonomy provides a framework for healthcare professionals supporting joint decisions on preconception ECS.
- Healthcare providers should allocate sufficient time for decision-making.
- Promoting dialogue can empower less dominant partners in the couple's decision-making process.
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