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Implementation of a Perinatal Hospice Program.

Megan Falke1, Lori Baas Rubarth

  • 1Neonatology, Nebraska Medicine, Omaha (Dr Falke); School of Nursing, Creighton University, Omaha, Nebraska (Drs Falke and Rubarth); and NNP Coordinator, Creighton University, College of Nursing, Omaha, Nebraska (Dr Rubarth).

Advances in Neonatal Care : Official Journal of the National Association of Neonatal Nurses
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PubMed
Summary
This summary is machine-generated.

A new perinatal hospice program was implemented to support families with high-risk pregnancies. Despite program development, no qualifying referrals have been received, highlighting a need for improved referral guidelines.

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Area of Science:

  • Perinatal Medicine
  • Palliative Care
  • Healthcare Program Implementation

Background:

  • Nebraska legislative bill 506 mandated physician communication regarding perinatal hospice options for life-limiting fetal anomalies.
  • Statewide information on hospice programs was required from the Department of Health & Human Services.
  • A large academic medical center lacked a formal perinatal hospice program despite being listed on the state registry.

Purpose of the Study:

  • To implement a comprehensive perinatal hospice program within a large academic medical center.
  • To provide structured support for families facing pregnancies with life-limiting fetal anomalies.

Main Methods:

  • Formation of an interdisciplinary team to design and implement the program.
  • Development of guidelines for referral, care conferences, team communication, and family follow-up.
  • Implementation of electronic record documentation, order sets, and a data collection process.

Main Results:

  • The perinatal hospice program has been established and is accepting referrals.
  • Currently, there have been no referrals that meet the program's qualifying criteria.

Conclusions:

  • Evidence-based guidelines are needed to enhance referral consistency for perinatal hospice programs.
  • Families with diagnoses like trisomy 13 and 18 now have expanded options beyond historically considered life-limiting interventions.
  • Future research should focus on data collection for eligible patients, bereavement experiences, and referral process effectiveness.