Co-Developed Indigenous Educational Materials for Chronic Kidney Disease: A Scoping Review

Area of Science:

• Public Health
• Health Equity
• Indigenous Health

Background:

• Canadian Indigenous populations face higher chronic kidney disease (CKD) rates.
• Rural Indigenous individuals encounter barriers accessing CKD information and care.
• Marginalization within Western healthcare systems impacts Indigenous patient outcomes.

Purpose of the Study:

• To identify culturally appropriate, co-developed Indigenous educational tools for CKD.
• To support informed decision-making for end-stage kidney disease treatments.

Main Methods:

• A comprehensive scoping review of literature and gray matter databases.
• Systematic review of co-developed Indigenous educational materials for CKD.
• Consultation with an Indigenous Elder throughout the review process.

Main Results:

• Only one study identified a CKD tool co-developed with an Indigenous community.
• Key themes for co-developed tools include cultural appropriateness, utility, and integration of traditional/Western knowledge.
• Limited availability of existing co-developed CKD educational resources.

Conclusions:

• There is a significant knowledge gap regarding co-developed Indigenous CKD educational tools.
• Further research is needed to understand effective engagement with Indigenous communities for tool co-development.
• Contextualized and acceptable CKD tools are essential for Indigenous patient empowerment.