Adults' cochlear implant journeys through care: a qualitative study

Area of Science:

• Audiology
• Otolaryngology
• Health Services Research

Background:

• Severe sensorineural hearing loss (SNHL) significantly impacts quality of life.
• Cochlear implants (CIs) offer a solution for SNHL, yet implantation rates are low.
• Limited research exists on the transition from hearing aids to CIs.

Purpose of the Study:

• To explore patient and healthcare professional experiences with cochlear implantation.
• To identify barriers and facilitators in the journey towards CI.
• To understand the roles and responsibilities of healthcare professionals (HCPs) in CI care.

Main Methods:

• Multi-methods study involving 55 adults (≥50 years), hearing aid/CI users, GPs, and audiologists.
• Data collected via focus groups, interviews, and surveys.
• Thematic analysis of 143 data-capture events.

Main Results:

• Two main themes emerged: 'The burden of hearing loss and the impact of Cochlear Implants' and 'Professional Support and Practice, and HCPs Roles and Responsibilities'.
• Patient experiences highlight the progressive nature of hearing loss as a motivator for CI consideration.
• System complexity and a lack of defined referral pathways were identified as challenges.

Conclusions:

• The journey to cochlear implantation can be convoluted and complex.
• Clearer support, defined referral pathways, and reduced system complexity are needed for patients and HCPs.
• Addressing these factors may improve CI uptake and patient outcomes.