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Related Experiment Video

Updated: Dec 20, 2025

A Method for Investigating Change Blindness in Pigeons Columba Livia

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Lessons from One Arm Dove Hunt.

¹MFA Experimental and Documentary Arts, Duke University, Durham, NC.

Pediatric Dermatology

|June 3, 2020

Summary

This summary is machine-generated.

Jacob Moss

Keywords:

ectodermal dysplasia genetic diseases/mechanisms hair disorders mucous membrane disorders nail disorders

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Area of Science:

Medical Humanities
Sociology
Art Therapy

Background:

Ectodermal dysplasia is a group of genetic disorders affecting ectodermal structures.
Individuals with ectodermal dysplasia often face unique physical and social challenges.
Documentary photography offers a powerful medium for exploring lived experiences.

Purpose of the Study:

To explore the lived experiences of individuals with ectodermal dysplasia through documentary photography.
To examine the personal journey of artist Jacob Moss growing up with ectodermal dysplasia.
To understand the collaborative process and shared experiences within the ectodermal dysplasia community.

Main Methods:

Documentary photography project: "One Arm Dove Hunt".
Personal narrative and reflection by the artist.
Qualitative exploration of collaboration with other individuals with ectodermal dysplasia.

Main Results:

The project visually documents the realities of living with ectodermal dysplasia.
Moss's personal narrative provides insight into navigating the condition from childhood.
Collaboration highlights shared challenges and community support among individuals with ectodermal dysplasia.

Conclusions:

Documentary photography can effectively convey the multifaceted experiences of rare genetic conditions.
Personal and collaborative narratives are crucial for understanding the social and emotional impact of ectodermal dysplasia.
The "One Arm Dove Hunt" project fosters empathy and awareness for the ectodermal dysplasia community.