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Personal data usage and privacy considerations in the COVID-19 global pandemic
Bethania de Araujo Almeida1, Danilo Doneda2, Maria Yury Ichihara1
1Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil. baraujo2010@gmail.com.
Digital technologies track public health data for COVID-19 surveillance. This raises ethical and legal concerns about personal data use, highlighting the need for responsible data governance in public health emergencies.
Area of Science:
- Public Health
- Digital Health
- Data Governance
Background:
- COVID-19 crisis highlighted data's value for scientists and health authorities.
- Difficulties in diagnosing COVID-19 spurred digital technology initiatives for public health surveillance.
- Tracking symptoms, contacts, and movements became crucial for infection monitoring.
Purpose of the Study:
- To examine the ethical, legal, and technical challenges of using personal data for public health surveillance during the COVID-19 pandemic.
- To underscore the necessity of robust data governance models for managing health data.
Main Methods:
- Analysis of data collection, processing, sharing, and usage in public health initiatives.
- Review of ethical, legal, and technical considerations surrounding digital health technologies for disease surveillance.
Main Results:
- Digital technologies are widely used for tracking public health data related to COVID-19.
- Significant ethical, legal, and technical questions arise concerning the collection and use of personal health data.
- Existing data governance models are insufficient for addressing these challenges.
Conclusions:
- New models for responsible and transparent data and technology governance are essential for controlling SARS-COV2.
- Effective governance is crucial for future public health emergencies and managing sensitive health information.
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