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Extending the Concept of Advance Care Planning to the Perinatal Period

Lars Garten1, Kerstin von der Hude1, Thomas Strahleck2

  • 1Neonatology, Charité Universitätsmedizin Berlin, Berlin, Germany.

Klinische Padiatrie
|June 17, 2020
PubMed

Insights

Prenatal diagnosis increasingly identifies life-limiting illnesses. Advance Care Planning (ACP) helps families and medical teams plan future care, ensuring treatment aligns with parental values for newborns with serious conditions.

Area of Science:

  • Perinatal Medicine
  • Medical Ethics
  • Pediatric Palliative Care

Background:

  • Prenatal diagnostic procedures are now widely used for screening.
  • Life-limiting illnesses are increasingly diagnosed during fetal development.
  • This necessitates proactive planning for affected infants and families.

Purpose of the Study:

  • To explore the role of Advance Care Planning (ACP) in the perinatal context.
  • To address the needs of families with unborn or newborn infants diagnosed with life-limiting conditions.
  • To align medical care with parental values and wishes.

Main Methods:

  • Conceptual framework analysis.
  • Review of ethical and clinical guidelines for perinatal care.
  • Exploration of ACP principles in managing complex pediatric cases.

Main Results:

  • ACP provides a structured approach for multidisciplinary teams, families, and caregivers.
  • It facilitates anticipation and planning for future medical decisions.
  • ACP ensures care respects the unique values and wishes of parents.

Conclusions:

  • Advance Care Planning is crucial for perinatal care of infants with life-limiting illnesses.
  • It helps avoid burdensome interventions and focuses on meaningful goals for child and family.
  • ACP supports informed decision-making and patient-centered care from diagnosis through delivery and beyond.

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