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Customised pediatric palliative care: Integrating oncological and palliative care priorities
Marta Podda1, Elisabetta Schiavello1, Giovanna Visconti2
1Pediatric Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milano, Italy.
Insights
Early palliative care (PC) improved outcomes for pediatric oncology patients in Milan. More patients died at home or hospice, and PC duration increased, with no deaths in intensive care units.
Area of Science:
- Pediatric Oncology
- Palliative Care
- Oncology
Background:
- The Istituto Nazionale Tumori of Milan introduced early palliative care (PC) for pediatric oncology patients.
- A comparison was made between patients receiving early PC and those treated before its introduction.
Purpose of the Study:
- To describe the experience of early PC introduction in pediatric oncology.
- To compare outcomes of patients receiving early PC with a historical cohort.
Main Methods:
- A virtual team for PC was established in 2015, with providers operating outside the hospital.
- Patient data from January 2015 to April 2019 were compared with records of patients who died between 2009 and 2014.
Main Results:
- 41 patients with CNS tumors or sarcomas received early PC.
- Patients receiving early PC showed an increased number of deaths at home/hospice and longer PC duration.
- No patients receiving early PC died in the intensive care unit.
Conclusions:
- Early palliative care enabled pediatric oncology patients to continue cancer treatments and participate in trials.
- Early PC integration is recommended for all patients with a poor prognosis.
Aim:
To describe the experience involving the early introduction of palliative care (PC) in oncological patients treated within the paediatric oncology unit of the Istituto Nazionale Tumori of Milan and compare this cohort with a cohort of patients resident in the same area treated before the introduction of early palliative care.
Methods:
A virtual team was assembled in 2015. The PC providers operate outside the hospital. Conference calls were scheduled to discuss patients' problems. This sample was compared with the clinical records of patients residing in the same area who died between 2009 and 2014.
Results:
Between January 2015 and April 2019, 41 patients residing in the Milan area mainly with CNS tumours or sarcomas were referred to the team. Comparing the results with the previous cohort, there was a rise in the number of patients dying at home or in a hospice and the duration of PC increased over time. From 2015, none of the patients died in an intensive care unit.
Conclusion:
Patients managed by the virtual team were able to continue their cancer treatments, take part in Phase I trials and receive PC. All patients with a poor prognosis should have PC at an early stage.
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