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Updated: Dec 18, 2025
Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Parents' perceptions of core outcomes in neonatal research in two Nigerian neonatal units
Sarah Kathryn Read1, Aisha Jibril2, Olukemi Tongo3
1Department of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UK.
Insights
Parents in low-resource settings prioritize breastfeeding, baby
Area of Science:
- Neonatal research
- Global health equity
- Core Outcome Set (COS) development
Background:
- Limited data exists on critical outcomes for neonatal research in low-resource environments.
- Stakeholder input is crucial for developing a relevant Core Outcome Set (COS).
Purpose of the Study:
- To capture parental perspectives on important outcomes for neonatal care.
- To inform the development of a COS for neonatal research in sub-Saharan Africa.
Main Methods:
- Conducted semistructured interviews with parents of neonates in Nigerian neonatal units.
- Purposive sampling included parents of infants with common neonatal conditions, including prematurity.
Main Results:
- Key outcomes identified by parents include breastfeeding, infant health, education, growth, and financial costs.
- Parents emphasized quality of life and functional status over solely focusing on medical complications.
Conclusions:
- Parental input is essential for creating a meaningful COS in low-resource neonatal research.
- Further research should explore diverse low-resource settings and engage a wider array of stakeholders.
Background:
There is a scarcity of information regarding the most important outcomes for research in neonatal units in low-resource settings. Identification of important outcomes by different stakeholder groups would inform the development of a core outcome set (COS) for use in neonatal research.
Objective:
To determine the perceptions and opinions of parents of newborn babies regarding what outcomes were most important to them in order to contribute towards development of a COS for neonatal research in sub-Saharan Africa.
Methods:
Semistructured interviews were undertaken with parents, mostly mothers, of babies admitted to one neonatal unit in North central and one in Southwest Nigeria. Participants were purposively sampled to include parents of babies with common neonatal problems such as prematurity.
Results:
We conducted 31 interviews. The most frequently raised outcomes were breast feeding, good health outcomes for their baby, education, growth and financial cost. Parents placed more emphasis on quality of life and functional status than health complications.
Conclusions:
The opinions of parents need to be considered in developing a COS for neonatal research in low-resource settings. Further research should assess the opinions of families in other low-resource settings and also engage a broader range of stakeholders.
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