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Published on: February 16, 2011
Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor
Laura Yvonne Bulk1, Gil Kimel2, Nigel King3
1The University of British Columbia, Vancouver, British Columbia, Canada.
End-of-life quality of life is shaped by time, occupation, and relationships. Understanding their interplay helps carers support patients and families by addressing temporal disruptions and shifting priorities.
Area of Science:
- Gerontology
- Occupational Therapy
- Sociology
Background:
- Quality of life at end-of-life is influenced by temporality, occupation, and relationships.
- Existing research lacks understanding of the interplay between these factors.
- Meaning is negotiated through social interaction and occupational engagement within temporal contexts.
Purpose of the Study:
- To explore how temporality, occupation, and relationships interact to influence end-of-life quality of life.
- To provide insights for scholars, practitioners, and educators on these complex dynamics.
Main Methods:
- In-depth interviews with 9 patients and 10 family members.
- Utilized the Pictor visual elicitation technique.
- Employed iterative open and selective coding for analysis.
Main Results:
- Identified three key processes: temporal rupture, diminished significance of clock time, and shifts in occupational priorities.
- Demonstrated how temporal experiences impact quality of life.
- Highlighted the negotiated nature of meaning in end-of-life contexts.
Conclusions:
- Interactions between temporality, occupation, and relationships significantly shape end-of-life quality of life.
- Fostering positive temporal experiences is crucial for patient and family well-being.
- Findings offer practical guidance for carers supporting individuals at the end of life.
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