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Ethical Dilemmas II01:30

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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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A Netnographic Approach: Views on Assisted Dying for Individuals With Dementia.

Aida Dehkhoda1, R Glynn Owens1, Phillipa J Malpas1

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Many fear dementia and support advance euthanasia directives. This allows competent patients to plan end-of-life care, preventing suffering and preserving choice when decision-making ability is lost.

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Area of Science:

  • Gerontology
  • Bioethics
  • Sociology

Background:

  • Global dementia diagnoses are rising, increasing interest in end-of-life options.
  • Assisted dying for individuals with dementia is a sensitive and controversial topic.

Purpose of the Study:

  • To explore conceptualizations of assisted dying for people with dementia.
  • To understand public perspectives through online narratives.

Main Methods:

  • Observational netnography over 20 months in five open Facebook communities.
  • Thematic analysis of 1,007 online comments regarding assisted dying and dementia.

Main Results:

  • Four central themes emerged: understanding dementia, assisted dying laws, caregiver emotions, and moral/personal dilemmas.
  • Contributors expressed significant fear of developing dementia.
  • A majority supported advance euthanasia directives for individuals losing decision-making capacity.

Conclusions:

  • Online communities reveal strong support for advance euthanasia directives for dementia patients.
  • These directives are seen as crucial for preventing suffering and upholding patient autonomy.
  • Findings highlight the need to address end-of-life care wishes for individuals with cognitive decline.