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TEDIS, a Comprehensive Data Model for In-Depth Clinical Assessment of Patients Affected with Neuro-Developmental
Mohamed Ben Said1, Laurence Robel2, Pauline Chaste3
1Paris Descartes University, Faculty of Medicine, Biostatistics Unit, Necker Hospital, APHP - Paris, France.
Abstract:
TEDIS, an information system dedicated to patients affected with neuro-developmental disorders including autism, focuses on patient data generated during in-depth clinical assessment in nine expert centers in Ile-de-France region. Long term partnership involving methodologists and domain experts is necessary to support quality data production and analyses and to guarantee quality data and information governance in a domain characterized by frequent evolutions in clinical assessment instruments and in diagnostic criteria and classification.
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