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Managing an altered social context-Patients experiences of staying away from home while undergoing proton beam
Marie-Louise Möllerberg1, Ulrica Langegård2, Emma Ohlsson-Nevo3
1RI.SE (Research Institute of Sweden) Lund Sweden.
Aim:
To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy.
Design:
A descriptive, qualitative cross-sectional interview study.
Methods:
Nineteen patients were interviewed between December 2015-August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed.
Results:
Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity.
Conclusion:
It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.
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