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Safety Precautions and Operating Procedures in an ABSL-4 Laboratory: 3. Aerobiology
Published on: October 3, 2016
Pandemics, privacy, and public health research
Alexander Bernier1, Bartha Maria Knoppers2
1Centre of Genomics and Policy, Faculty of Medicine, McGill University, 740, Avenue Dr. Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada. alexander.bernier@mail.mcgill.ca.
Abstract:
Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlapping sources can stifle flows of medical data among clinicians, researchers, and institutions. Authorities should support caregivers and accelerate research by providing clear guidance to the health sector. Institutions should foster robust data stewardship and standardize their practices to those recognized among the international health informatics community. Reform is critical to ensuring Canadian healthcare providers can deliver efficient health responses that are integrated with dispersed and disparate national and international approaches.
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