Why and How Bioethics Must Turn toward Justice: A Modest Proposal

Area of Science:

• Genomics
• Bioethics
• Social Justice

Background:

• Current bioethical frameworks in genomics often focus on individual consent.
• There's a need to address structural inequities impacting genomic research and its applications.
• Expanding bioethical imaginations is crucial for a more just genomics.

Purpose of the Study:

• To argue for centering justice in genomics.
• To propose expanding bioethical scope to include structural inequity.
• To advocate for novel collaborations in bioethical governance.

Main Methods:

• Conceptual analysis of justice in genomics.
• Examination of bioethical governance models.
• Case study of coalition building at the Science and Justice Research Center.

Main Results:

• Genomics requires a shift from individual consent to collective justice.
• Novel coalitions bridging social and natural sciences are essential.
• New training and thinking are needed for a just genomics.

Conclusions:

• A genomics that benefits society must integrate principles of justice.
• Interdisciplinary and cross-sectoral collaborations are key.
• Addressing structural inequities is fundamental for equitable genomic futures.