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Citizen science to further precision medicine: from vision to implementation
Carolyn Petersen1, Robin R Austin2, Uba Backonja3,4
1Division of Biomedical Statistics and Informatics, Mayo Clinic, Rochester, Minnesota, USA.
Citizen science enhances precision medicine research by involving the public in all study phases. Implementing this approach requires addressing technical, organizational, and collaboration challenges for healthcare providers and institutions.
Area of Science:
- Healthcare Research
- Citizen Science
- Precision Medicine
Background:
- Citizen scientists actively contribute to research, improving processes and outcomes.
- Precision medicine integrates patient-specific data for tailored treatments.
- Integrating citizen science into precision medicine presents unique challenges.
Purpose of the Study:
- To identify barriers and necessary changes for adopting citizen science in healthcare.
- To explore the potential of citizen science in precision medicine research and clinical care.
Main Methods:
- Perspective paper based on a workshop at the 2018 AMIA Annual Symposium.
- Discussion of technical, organizational, and collaboration issues.
- Analysis of required cultural and structural shifts.
Main Results:
- Citizen science involvement spans research agenda setting to implementation.
- Adoption requires addressing technical and organizational hurdles.
- Significant changes include cultural shifts, power redistribution, and improved communication.
Conclusions:
- Broad adoption of citizen science in healthcare necessitates overcoming identified barriers.
- Facilitating citizen science integration requires institutional commitment and strategic planning.
- Citizen science can transform precision medicine through collaborative research and care.
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