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Author Spotlight: Quantifying Pain Experience – An Illustrative Approach Using the Pain Body Diagram
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Author Spotlight: Quantifying Pain Experience – An Illustrative Approach Using the Pain Body Diagram

Published on: July 7, 2023

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Developing a pediatric pain data repository

Carolina Donado1, Kimberly Lobo1, Charles B Berde1,2

  • 1Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children's Hospital, Boston, Massachusetts, USA.

JAMIA Open
|July 2, 2020
PubMed

Insights

A new pediatric pain data repository collects patient-reported outcomes and electronic health records. This system aims to improve pain management by enabling systematic evaluation of treatments and enhancing data collection for better clinical decisions.

Area of Science:

  • Pediatric Pain Management
  • Clinical Data Warehousing
  • Patient-Reported Outcomes

Background:

  • Pediatric pain management lacks systematic evaluation of individualized treatment plans.
  • There is a need for systems to translate clinical discoveries and assess interventions.
  • Improving the collection of patient-centered data beyond routine clinical information is crucial.

Purpose of the Study:

  • To present the development of a pediatric pain data repository.
  • To create a system supporting clinical discoveries and intervention assessment.
  • To enhance the collection of patient-centered data in pediatric pain management.

Main Methods:

  • Developed a custom-built web platform for a pediatric pain data repository.
  • Collected standardized patient-reported outcomes.
  • Integrated repository data with electronic medical record data.

Main Results:

  • Collected data on 2577 pediatric pain patients to date.
  • Anticipates adding approximately 500 new patients annually.
  • The repository integrates longitudinal patient-reported outcomes and automated clinical data abstraction.

Conclusions:

  • The pediatric pain data repository facilitates systematic evaluation of interventions.
  • The system integrates clinical workflows to support medical decision-making.
  • This repository enhances the collection and utilization of patient-centered data for pediatric pain management.

Keywords:
data repositoryelectronic health recordspain conditionspatient-reported outcomespediatric populations

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