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Author Spotlight: Quantifying Pain Experience – An Illustrative Approach Using the Pain Body Diagram

Author Spotlight: Quantifying Pain Experience – An Illustrative Approach Using the Pain Body Diagram

Published on: July 7, 2023

Developing a pediatric pain data repository.

Carolina Donado¹, Kimberly Lobo¹, Charles B Berde^1,2

¹Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children's Hospital, Boston, Massachusetts, USA.

|July 2, 2020

Summary

A new pediatric pain data repository collects patient-reported outcomes and electronic health records. This system aims to improve pain management by enabling systematic evaluation of treatments and enhancing data collection for better clinical decisions.

Keywords:

data repository electronic health records pain conditions patient-reported outcomes pediatric populations

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Area of Science:

Pediatric Pain Management
Clinical Data Warehousing
Patient-Reported Outcomes

Background:

Pediatric pain management lacks systematic evaluation of individualized treatment plans.
There is a need for systems to translate clinical discoveries and assess interventions.
Improving the collection of patient-centered data beyond routine clinical information is crucial.

Purpose of the Study:

To present the development of a pediatric pain data repository.
To create a system supporting clinical discoveries and intervention assessment.
To enhance the collection of patient-centered data in pediatric pain management.

Main Methods:

Developed a custom-built web platform for a pediatric pain data repository.
Collected standardized patient-reported outcomes.
Integrated repository data with electronic medical record data.

Main Results:

Collected data on 2577 pediatric pain patients to date.
Anticipates adding approximately 500 new patients annually.
The repository integrates longitudinal patient-reported outcomes and automated clinical data abstraction.

Conclusions:

The pediatric pain data repository facilitates systematic evaluation of interventions.
The system integrates clinical workflows to support medical decision-making.
This repository enhances the collection and utilization of patient-centered data for pediatric pain management.