Caregivers Help-Seeking Behaviors for Postdischarged Neonates from Neonatal Intensive Care Units: A Jordanian Study

This study will explore and describe help-seeking behaviors and decision-making processes of Arab Muslim caregivers in Jordan when seeking help for their sick neonates after discharge from Neonatal Intensive Care Units (NICU). This study which will contribute to the global discussion on the reasons/conditions contributing to neonatal mortality.

A descriptive cross-sectional survey was used. Two research assistants interviewed 275 identified neonate caregivers by telephone from May 1 to August 30, 2019. Data were analyzed using SPSS version 25.

Caregivers who had a neonate who had been discharged from a NICU were surveyed about the types of condition for which they would seek medical help. The vast majority (98.2%) stated that they would seek help if their child was unconscious and 95.3% reported that they would do so if their child experienced a convulsion. Fewer caregivers (43.3%) stated that abdominal distension (43.3%) would cause them to seek help immediately.

Recognition of danger signs during the neonatal period was considered poor among neonate caregivers. Using self-management treatments and home remedies delayed appropriate medical treatment for neonate illnesses. Lack of money was identified as the most common reason for delaying going to or not using health facilities. This study highlights the need to create a specialized program to focus on interventions that could reduce neonatal deaths and improve families' help-seeking behaviors in Jordan.

Nurses are required to be well-trained to support caregivers to prioritize neonatal issues (pre and post discharge) that require quick action (minutes versus hours) and which most commonly lead to mortality. Nurses are required to provide appropriate education for caregivers pre-discharge and such teachings could be reinforced during home visits.