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Exploring Genetic Literacy in a Small Hispanic Population.
Kimberly Subasic1, Rebecca Kronk2, Andrea Mantione1
1The University of Scranton, Scranton, PA, USA.
Summary
This study assessed genetic literacy in a Hispanic clinic population using a translated questionnaire. Findings highlight the need for culturally sensitive genetic literacy tools for diverse communities.
Area of Science:
- Genomics
- Health Literacy
- Cultural Competency in Healthcare
Background:
- Genetic literacy is crucial for informed health decisions, but limited understanding can lead to poor health outcomes.
- Assessing genetic literacy in diverse populations is essential for developing targeted educational interventions.
- The Hispanic population presents unique linguistic, ethnic, and cultural considerations for health information dissemination.
Purpose of the Study:
- To evaluate the utility of an assessment tool for measuring genetic literacy in a Hispanic clinic setting.
- To explore the relevance and cultural appropriateness of a translated genetic literacy questionnaire.
Main Methods:
- A mixed-method, cross-sectional pilot study was conducted.
- An established questionnaire underwent forward-back translation into Spanish.
- Twenty Spanish-speaking adults were recruited using purposive and convenience sampling.
Main Results:
- The translated questionnaire proved comparable and relevant to participants.
- Qualitative feedback revealed significant regional linguistic and cultural differences.
- Quantitative analysis provided descriptive statistics and reliability measures (Cronbach's alpha).
Conclusions:
- Culturally and linguistically adapted assessment tools are necessary for evaluating genetic literacy in the Hispanic population.
- Future research should focus on developing and validating such tailored instruments to improve health outcomes.
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