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Tackling global challenges in pediatric rheumatology
1National Institute of Arthritis, Musculoskeletal and Skin Diseases, NIH, DHHS, Bethesda, Maryland, USA.
Insights
Global pediatric rheumatic diseases are understudied, impacting child health. Increased research and education in underserved regions are crucial for better diagnosis and care.
Area of Science:
- Pediatric Rheumatology
- Global Health
- Rheumatic Diseases
Background:
- The global burden of pediatric rheumatic diseases is not well understood.
- Underrecognized conditions significantly affect pediatric morbidity and mortality.
- Musculoskeletal diseases are prevalent and contribute to loss of healthy life years.
Purpose of the Study:
- To highlight challenges in diagnosing and treating pediatric rheumatic diseases worldwide.
- To identify barriers in research and education for pediatric rheumatologists globally.
- To address the need for improved access to care and training in underserved regions.
Main Methods:
- Review of recent studies and reports on pediatric rheumatic diseases.
- Analysis of global burden and epidemiological data.
- Examination of international collaborative efforts and published guidelines.
Main Results:
- Paucity of studies on epidemiology, outcomes, and management guidelines from many regions.
- Demonstrated global diversity in juvenile idiopathic arthritis manifestations and outcomes.
- Publication of the first management guidelines for juvenile idiopathic arthritis in low-resourced settings.
Conclusions:
- More research is needed in lesser-resourced regions to prioritize access to pediatric rheumatology care.
- Increased research capacity and education are essential for advancing global pediatric rheumatology.
- International collaboration serves as a model for addressing pediatric rheumatic disease research and care.
Purpose Of The Review:
To highlight the current challenges in diagnosis and clinical care of pediatric rheumatic disease and barriers to research and education of pediatric rheumatologists worldwide.
Recent Findings:
Recent studies and reports demonstrate a paucity of studies on epidemiology, outcomes, and management guidelines from many regions of the world. There have been noteworthy efforts to bridge the gap in under resourced areas. An analysis of the global burden of rheumatic disease has demonstrated that while understudied, musculoskeletal diseases are prevalent and increasingly contribute to loss of years of healthy life. In juvenile idiopathic arthritis, two milestone publications in global pediatric rheumatology have recently been published. An international study evaluated the epidemiology, treatment, and outcomes of juvenile idiopathic arthritis and demonstrated global diversity in both clinical manifestations and outcomes. Notably, the first guidelines for managing pediatric rheumatic disease in a less resourced setting have been published for juvenile idiopathic arthritis. This document offers the first publication targeted to address challenges faced by pediatric rheumatology caregivers in low-resourced settings. These documents serve as exemplars for international collaboration in pediatric rheumatology and can be used as models for other pediatric rheumatic disease research. Other efforts are making progress in various arenas towards increasing access to care, education, and training in pediatric rheumatology.
Summary:
The global burden of rheumatic disease in the pediatric population is poorly understood but unrecognized disease greatly impacts the overall morbidity and mortality in this population. More studies in lesser resourced regions are needed to prioritize access to pediatric rheumatology care and prioritize a further increase in research capacity and education moving forward.
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