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Patients' experiences with fluctuations in persistent physical symptoms: a qualitative study
Hieke Barends1,2, Ella Walstock3,2, Femke Botman3,2
1Department of General Practice and Elderly Care Medicine, Amsterdam UMC - VUMC location, Amsterdam, Noord-Holland, The Netherlands h.barends@amsterdamumc.nl.
Patients with persistent physical symptoms (PPS) experience daily and weekly symptom fluctuations, often caused by overstepping limits or negative emotions. They develop strategies to manage these symptom exacerbations and regain control.
Area of Science:
- Medical Research
- Qualitative Health Research
- Symptom Management
Background:
- Persistent Physical Symptoms (PPS) present complex challenges for patients.
- Understanding patient experiences with symptom fluctuations is crucial for effective management.
Purpose of the Study:
- To explore patient experiences with symptom fluctuations in Persistent Physical Symptoms (PPS).
- To identify factors influencing these fluctuations from the patients' perspective.
Main Methods:
- Qualitative study employing semistructured interviews.
- Thematic content analysis of interview data.
- Part of a multicentre prospective cohort study on PPS.
Main Results:
- Identified three key themes: symptom fluctuation patterns, perceived causes of exacerbations, and patient control strategies.
- Daily and weekly symptom fluctuations significantly impacted daily routines and posed challenges.
- Symptom exacerbations were linked to exceeding physical limits and/or negative emotions.
Conclusions:
- Symptom fluctuations, especially daily/weekly exacerbations, are a significant aspect of the PPS experience.
- Patients attribute exacerbations to physical overexertion and emotional distress.
- Patients utilize various strategies to manage and control symptom exacerbations.
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