Ways Ahead: developing a supported self-management programme for people living with low- and intermediate-grade...

Area of Science:

• Neuro-oncology
• Quality of Life Research
• Health Psychology

Background:

• Low- and intermediate-grade gliomas (LIGG) significantly impact survivors' quality of life (QoL).
• Self-management strategies can enhance QoL in chronic conditions, but existing programs may not suit LIGG survivors' unique needs.
• There is a need for tailored supported self-management programs for LIGG survivors.

Purpose of the Study:

• To explore the needs, barriers, and facilitators of self-management for LIGG survivors.
• To co-produce a prototype supported self-management program for LIGG survivors.
• To assess the feasibility and benefits of integrating the program into survivorship care.

Main Methods:

• Systematic review of self-management interventions in cancer.
• Phase 1: Qualitative interviews with survivors, carers, and professionals; thematic analysis.
• Phase 2: Co-production workshops; Phase 3: Health economic assessment.

Main Results:

• The study is in progress, focusing on gathering data to inform program development.
• Anticipated results will detail survivor needs and inform the design of a prototype program.
• The health economic assessment will guide implementation strategies.

Conclusions:

• A tailored supported self-management program is needed for LIGG survivors.
• The Ways Ahead study aims to develop and assess a prototype program to improve LIGG survivorship care.
• Findings will be disseminated to inform clinical practice and future research.