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Developing a Next-of-Kin Involvement Guide in Cancer Care-Results From a Consensus Process
Inger J Bergerød1, Geir S Braut, Birte Fagerdal
1Author Affiliations: Stavanger University Hospital (Ms Bergerød and Drs Braut and Gilje); SHARE-Centre for Resilience in Healthcare, Faculty of Health Sciences, University of Stavanger (Ms Bergerød and Dr Wiig); Stavanger Unversity Hospital, Department of Hematology and Oncology (Ms Bergerød and Dr Gilje); and Haukeland University Hospital, Bergen, Norway (Ms Fagerdal).
Background:
In hospital cancer care, there is no set standard for next-of-kin involvement in improving the quality of care and patient safety. There is therefore a growing need for tools and methods that can guide this complex area.
Objective:
The aim of this study was to present the results from a consensus-based participatory process of designing a guide for next-of-kin involvement in hospital cancer care.
Method:
A consensus process based on a modified Nominal group technique was applied with 20 stakeholder participants from 2 Norwegian university hospitals.
Result:
The participants agreed on the 5 most important priorities for hospital cancer care services when involving next-of-kin. The results showed that next-of-kin stakeholders, when proactively involved, are important resources for the patient and healthcare professionals in terms of contribution to quality and safety in hospitals. Suggested means of involving next-of-kin were closer interaction with external support bodies, integration in clinical pathways, adjusted information, and training healthcare professionals.
Conclusion:
In this study, we identified topics and elements to include in a next-of-kin involvement guide to support quality and safety in hospital cancer care. The study raises awareness of the complex area of next-of-kin involvement and contributes with theory development and knowledge translation in an involvement guide tailored for use by healthcare professionals and managers in everyday clinical practice.
Implications For Practice:
Service providers can use the guide to formulate intentions and make decisions with suggestions and priorities or as a reflexive tool for organizational improvement.
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