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A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program
Published on: April 19, 2019
Identifying elements for a comprehensive paediatric cardiac rehabilitation programme
Tracy Curran1,2, Naomi Gauthier1, Susan M Duty2
1Department of Cardiology, Boston Children's Hospital, Boston, MA, USA.
Experts reached consensus on key components for paediatric cardiac rehabilitation curricula for congenital heart disease patients. This establishes standards for exercise training, education, and self-confidence to optimize health outcomes.
Area of Science:
- Cardiology
- Paediatric Exercise Physiology
- Rehabilitation Medicine
Background:
- Congenital heart disease (CHD) impacts paediatric populations requiring specialized rehabilitation.
- Developing a structured paediatric cardiac rehabilitation curriculum is crucial for managing CHD.
- A consensus-based approach ensures comprehensive and relevant curriculum development.
Purpose of the Study:
- To identify essential content for a paediatric cardiac rehabilitation curriculum for young patients with CHD.
- To establish consensus on the structure and domains of the curriculum.
- To inform the development of evidence-based practice guidelines.
Main Methods:
- A three-round electronic Delphi study was conducted with experts in CHD and paediatric exercise physiology.
- Experts provided and rated essential elements for the curriculum through questionnaires.
- Consensus was defined as agreement reached on questionnaire items across specified domains.
Main Results:
- 37 of 47 contacted experts (79%) participated, with 28 completing all three rounds.
- Consensus was achieved on 55 out of 60 (92%) items after Round 2.
- Key domains for consensus included exercise training, education, outcome metrics, and self-confidence.
Conclusions:
- Consensus was established on programme structure, exercise principles, educational content, outcome measures, and self-confidence promotion.
- This consensus provides a foundation for benchmarking standards in paediatric cardiac rehabilitation.
- The findings support the development and testing of a curriculum to optimize health and wellness in paediatric CHD patients.
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