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Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study

Rahul Verma1,2, Yasna Mehdian3, Neel Sheth4

  • 1Department of Paediatrics, Children's Hospital, London Health Sciences Centre, London, Ontario, Canada.

BMJ Paediatrics Open
|August 14, 2020
PubMed

Insights

Family caregivers of children with medical complexity experience significant psychosocial risk, with many in the highest-risk category. Sociodemographic factors did not predict these elevated Psychosocial Assessment Tool (PAT) scores.

Area of Science:

  • Pediatric Healthcare
  • Caregiver Support
  • Psychosocial Health

Background:

  • Children with medical complexity require extensive family caregiving.
  • Assessing psychosocial risk in these caregivers is crucial for targeted support.
  • The Psychosocial Assessment Tool (PAT) is a validated measure for this purpose.

Purpose of the Study:

  • To quantify psychosocial risk in family caregivers of children with medical complexity using the PAT.
  • To identify sociodemographic factors associated with caregiver psychosocial risk.

Main Methods:

  • Cross-sectional study involving 136 family caregivers of children with medical complexity.
  • Caregivers completed the PAT questionnaire during clinic visits.
  • Multiple linear regression analyzed sociodemographic predictors of PAT scores.

Main Results:

  • The mean PAT score indicated 'Targeted' intermediate risk (1.17).
  • A significant proportion of caregivers (11%) were in the 'Clinical' high-risk category.
  • No specific sociodemographic factors significantly predicted overall PAT scores.

Conclusions:

  • Family caregivers of children with medical complexity exhibit high psychosocial risk compared to other pediatric populations.
  • A substantial number of these caregivers are in the highest-risk clinical category, necessitating intervention.
  • Further research is needed to understand and address the drivers of this elevated risk.
Abstract

Keywords:
intensive carepsychologyrespiratoryscreeningsocial work

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