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The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A
Katie Ekberg1, Lara Weinglass1, Stuart Ekberg2,3
1School of Early Childhood and Inclusive Education, Queensland University of Technology, Australia.
Insights
Paediatric palliative care consultations during the COVID-19 pandemic showed frequent discussions about the virus. Clinicians and families naturally integrated pandemic concerns into care, highlighting the need for flexible communication strategies.
Area of Science:
- Medical Communication
- Palliative Care
- Public Health Emergencies
Background:
- Paediatric palliative care is essential during pandemics.
- The COVID-19 pandemic offers insights into health communication challenges.
- Understanding communication shifts in paediatric palliative care during pandemics is crucial.
Purpose of the Study:
- To examine communication dynamics in paediatric palliative care consultations before and during the COVID-19 pandemic.
- To understand how clinicians and families discussed pandemic-related issues within consultations.
Main Methods:
- A sub-study analyzing video-recorded paediatric palliative care consultations.
- Utilized Conversation Analysis methods for detailed interactional analysis.
- Included face-to-face, telehealth, and inpatient consultations in Australia.
Main Results:
- COVID-19 was a pervasive topic in consultations during the pandemic.
- Discussions about the pandemic frequently arose from standard paediatric palliative care topics.
- Both clinicians (55%) and parents (45%) initiated conversations about the pandemic.
Conclusions:
- Pandemic-related discussions are expected in paediatric palliative care consultations.
- Clinicians should anticipate and address pandemic concerns flexibly.
- This awareness supports meeting family needs regarding health and wellbeing during health crises.
Background:
The importance of caring for children with complex and serious conditions means that paediatric palliative care must continue during pandemics. The recent pandemic of Coronavirus Disease 2019 (COVID-19) provides a natural experiment to study health communication during pandemic times. However, it is unknown how communication within consultations might change during pandemics.
Aim:
This study, a sub-study of a larger project, aimed to examine real-world instances of communication in paediatric palliative care consultations prior to and during the COVID-19 pandemic to understand how clinicians and families talk about the pandemic.
Design:
Paediatric palliative care consultations prior to, during, and immediately following the initial peak of COVID-19 cases in Australia were video recorded and analysed using Conversation Analysis methods.
Setting/Participants:
Twenty-five paediatric palliative care consultations (including face-to-face outpatient, telehealth outpatient and inpatient consultations) were video recorded within a public children's hospital in Australia. Participants included 14 health professionals, 15 child patients, 23 adult family members and 5 child siblings.
Results:
There was a pervasive relevance of both serious and non-serious talk about COVID-19 within the consultations recorded during the pandemic. Topics typical of a standard paediatric palliative care consultation often led to discussion of the pandemic. Clinicians (55%) and parents (45%) initiated talk about the pandemic.
Conclusions:
Clinicians should not be surprised by the pervasiveness of COVID-19 or other pandemic talk within standard paediatric palliative care consultations. This awareness will enable clinicians to flexibly address family needs and concerns about pandemic-related matters that may impact health and wellbeing.
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