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Developments in Privacy and Data Ownership in Mobile Health Technologies, 2016-2019.

Hannah K Galvin^1,2, Paul R DeMuro³

¹Cambridge Health Alliance, Cambridge, MA, USA.

Yearbook of Medical Informatics

|August 22, 2020

Summary

Mobile health (mHealth) data privacy is a growing concern, with re-identifiable data and inadequate user consent posing significant risks. A healthcare fiduciary model is proposed to safeguard personal health information in evolving regulatory landscapes.

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Area of Science:

Health Informatics
Digital Health
Data Privacy Law

Background:

Mobile health (mHealth) technologies generate vast amounts of personal health data.
Existing regulatory frameworks for data privacy as a human right are diverse globally.
Rapid technological advancements challenge current data protection measures.

Purpose of the Study:

To survey international regulations protecting personal data privacy as a human right.
To review literature on privacy protections and data ownership in mHealth technologies (2016-2019).
To identify common themes and challenges in mHealth data privacy.

Main Methods:

Systematic literature review of English-language articles from PubMed, Google Scholar, and Web of Science (Jan 2016 - June 2019).
Inclusion of relevant legislative background materials.
Categorization of articles to identify themes related to data transmission, storage, ownership, re-identification, user consent, access control, and global privacy attitudes.

Main Results:

mHealth data security, transmission, and storage are significant concerns, with de-identified data proving re-identifiable.
Informed consumer consent is often compromised by missing or overly complex privacy policies.
Global perceptions of health data privacy vary widely, necessitating improved access control strategies.

Conclusions:

International data privacy regulations are diverse and struggle to keep pace with technological innovation.
The concept of a 'healthcare fiduciary' is proposed to advocate for data subjects' best interests.
Addressing mHealth data privacy requires a multi-faceted approach considering technological, legal, and ethical dimensions.