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Published on: June 29, 2019
User-centered development of a hypospadias decision aid prototype
Katherine H Chan1, Rosalia Misseri2, Aaron Carroll3
1Department of Urology, Indiana University School of Medicine, Indianapolis, IN, USA; Center for Pediatric and Adolescent Comparative Effectiveness Research, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA; Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.
Parents and providers co-designed an interactive hypospadias decision aid (DA) prototype to reduce decisional conflict and regret. This parent-centered tool offers educational content, peer support, and decision-making activities for shared decision-making.
Area of Science:
- Pediatric Urology
- Health Informatics
- Patient Decision Support
Background:
- Hypospadias repair often leads to parental decisional conflict and regret.
- Parental decision-making for hypospadias surgery is complex, involving continuous information seeking to manage anxiety.
Purpose of the Study:
- To co-design a decision aid (DA) prototype with parents and providers for hypospadias surgery.
- To facilitate shared decision-making and address decisional conflict and regret.
Main Methods:
- Three co-design workshops were held with parents and pediatric providers.
- Qualitative analysis of transcribed discussions and worksheets identified key DA features.
- A collaborative prototyping session resulted in an interactive DA prototype.
Main Results:
- The DA prototype is user-friendly, interactive, and available 24/7.
- Key functions include customizable educational content, peer connection, and decision-making activities.
- The prototype comprises five modules: Hypospadias Basics, Surgery Basics, Testimonials, Help me Decide, and FAQs.
Conclusions:
- This study presents the first human-centered DA prototype for a pediatric urology condition, developed with diverse stakeholders.
- The created parent-centered DA offers online, interactive decision support for hypospadias surgery.
- Future research should involve usability testing with experts, providers, and parents.
