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Dysphagia in infantile cortical hyperostosis (Caffey's disease): a case study
1Teachers College, Columbia University, NJ.
Infantile cortical hyperostosis (Caffey's disease) can cause infant dysphagia. Continued therapeutic oral feeding alongside nutritional support aids oral feeding skills and infant-parent bonding.
Area of Science:
- Pediatrics
- Gastroenterology
- Genetics
Background:
- Infantile cortical hyperostosis, also known as Caffey's disease, is a rare disorder characterized by bone overgrowth.
- Dysphagia, or difficulty swallowing, is a common symptom in infants with Caffey's disease, often leading to feeding refusal and failure to thrive.
Observation:
- A four-month-old infant diagnosed with Caffey's disease presented with significant dysphagia.
- Nutritional support was provided via nasal or gastrostomy intubation.
- Therapeutic oral feeding was concurrently administered.
Findings:
- The combined approach of nutritional support and therapeutic oral feeding facilitated the development of oral feeding skills in the infant.
- This management strategy also promoted positive infant-parent bonding and the infant's experience of oral satisfaction.
Implications:
- Early and continued intervention focusing on oral feeding can mitigate the effects of dysphagia in infants with Caffey's disease.
- This approach highlights the importance of addressing both nutritional needs and developmental milestones in managing complex pediatric conditions.
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