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The Canadian Congenital Diaphragmatic Hernia Collaborative Mobile App: A National Guideline Implementation Strategy
Kathryn LaRusso1, Pramod S Puligandla2, Guilherme Sant' Anna3
1Harvey E. Beardmore Division of Pediatric Surgery, McGill University Health Centre, The Montreal Children's Hospital, Montreal, Quebec, Canada.
Insights
A new mobile app for congenital diaphragmatic hernia (CDH) clinical practice guidelines (CPG) successfully increased guideline utilization. The app demonstrated significant international reach, highlighting the global relevance of CDH care standards.
Area of Science:
- Medical Informatics
- Digital Health
- Clinical Practice Guidelines
Background:
- Congenital diaphragmatic hernia (CDH) requires complex, multi-phase care.
- Dissemination of clinical practice guidelines (CPG) is crucial for standardized care.
- Mobile technology offers a platform for accessible knowledge translation.
Purpose of the Study:
- To develop and evaluate a mobile smartphone application for the Canadian CDH Collaborative's CPG.
- To enhance the utilization of CDH guidelines among healthcare professionals.
- To promote knowledge translation in the management of CDH.
Main Methods:
- Development of a mobile app with 22 evidence-based recommendations across CDH care phases.
- Inclusion of evidence summaries, PubMed links, and expert consensus.
- Collection and analysis of download statistics, user data, and session details from September 2018 to June 2020.
Main Results:
- The app attracted 1,586 users globally, with significant reach in Canada, the US, and Brazil.
- The Android version enhanced visibility, particularly in Brazil.
- The guideline compliance checklist and postnatal ventilation sections were highly accessed, indicating utility.
Conclusions:
- The mobile app serves as an effective platform for disseminating CDH guidelines.
- The app's international adoption underscores the global importance of CDH CPG.
- Future development will focus on patient and family resources to support CDH management.
Objective:
Coinciding with the publication of the Canadian congenital diaphragmatic hernia (CDH) Collaborative's clinical practice guidelines (CPG), we developed a mobile smartphone app to increase guideline utilization and promote knowledge translation.
Study Design:
This mobile app was organized into sections corresponding to the phases of CDH care (prenatal, perinatal/postnatal, and child/adolescent), and contained 22 recommendations supported by evidence summaries, PubMed links, levels of evidence, and strength of expert consensus. Download statistics were collected from September 2018 to June 2020 after release of two iOS versions and an Android platform. Data regarding user numbers/location, most visited sections, and individual session details were analyzed.
Results:
During the study period, the CDH app had 1,586 users predominantly from Canada (40%), United States (30%), and Brazil (12%). The Android release increased app visibility, particularly in Brazil, which had the largest number of new users. Of 3,723 sessions, roughly one-third were returning users. The average session duration and screens viewed/session was 4 minutes and seven screens, respectively. Postnatal ventilation was the most frequently visited subsection after prenatal diagnosis/risk stratification. Measurement of observed-to-expected lung head ratio was the most visited individual recommendation. The guideline compliance checklist was the most frequently accessed resource highlighting its utility.
Conclusion:
The CDH app is an innovative platform to disseminate guidelines. The increasing global reach of the app suggests worldwide CPG relevance. With additional features planned, the CDH app will continue to support clinical decision-making and empower patients and families as they navigate the short and long-term challenges associated with CDH.
Key Points:
· Mobile smartphone technology provides an optimal platform for guideline dissemination.. · International uptake supports worldwide CPG relevance.. · Future initiatives include the development of patient and family resources..
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