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Experiences of living with juvenile idiopathic arthritis: a qualitative systematic review protocol

Ming Min1, David G Hancock2, Edoardo Aromataris3

  • 1Adelaide Medical School, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, Australia.

JBI Evidence Synthesis
|September 14, 2020
PubMed

Insights

This systematic review synthesizes qualitative research on the experiences of children and young adults with juvenile idiopathic arthritis (JIA) and their carers. Understanding these lived experiences is crucial for improving JIA management and patient-centered care.

Area of Science:

  • Rheumatology
  • Pediatrics
  • Qualitative Health Research

Background:

  • Juvenile idiopathic arthritis (JIA) is the most prevalent childhood rheumatic disease.
  • Effective treatments exist, yet JIA significantly impacts patients' and carers' lives.
  • Patient and carer perspectives are vital for health status measurement and treatment implementation in JIA.

Purpose of the Study:

  • To systematically review and synthesize qualitative evidence on the experiences of children, young adults, and their carers living with JIA.
  • To identify and critically appraise studies focusing on the lived experiences of individuals with JIA.
  • To highlight the needs of families throughout their JIA journey to inform better management.

Main Methods:

  • Systematic review of qualitative studies.
  • Inclusion of studies on patients aged under 21 diagnosed with JIA and their carers.
  • Utilizing JBI methodology for study selection, appraisal, data extraction, and synthesis.
  • Comprehensive database search (PubMed, CINAHL, Embase, PsycINFO, Web of Science) for English publications from 2001-2019.

Main Results:

  • This section is not applicable for a protocol abstract.
  • The review protocol outlines the planned synthesis of qualitative data.
  • Anticipated results will detail the multifaceted experiences of living with JIA.

Conclusions:

  • Understanding patient and carer experiences is essential for enhancing the management of JIA.
  • This systematic review will provide valuable insights into the needs of families affected by JIA.
  • Findings will inform the development of more effective, patient-centered JIA care strategies.
Abstract

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