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Online Cleft Educational Videos: Parent Preferences.

Karina Spoyalo1, Rebecca J M Courtemanche1, Erika Henkelman1

  • 1Division of Plastic Surgery, Department of Surgery, 37210British Columbia Children's Hospital, University of British Columbia, Vancouver, British Columbia, Canada.

The Cleft Palate-Craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association
|September 15, 2020
PubMed
Summary

Parents seek accessible, trustworthy online videos for cleft lip and palate care. Current YouTube content partially meets these needs, with gaps in information on hearing, dentition, and older child surgeries.

Keywords:
YouTubecleft lip and palatehealth educationneeds assessmentorofacial cleft

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Area of Science:

  • Craniofacial Medicine
  • Pediatric Healthcare Communication
  • Digital Health Education

Background:

  • Online educational videos are increasingly utilized by parents seeking information on managing conditions like cleft lip and palate.
  • Understanding parent preferences and evaluating the adequacy of existing resources is crucial for effective patient support.
  • The British Columbia Children's Hospital multidisciplinary cleft clinic serves a population with diverse needs related to cleft lip and palate.

Purpose of the Study:

  • To identify the key attributes parents value in online educational videos concerning cleft lip and palate.
  • To assess the extent to which current online video resources, specifically on YouTube, fulfill these identified parental needs.
  • To pinpoint specific information gaps in existing online video content for families navigating cleft lip and palate care.

Main Methods:

  • Qualitative research involving focus groups and telephone interviews with parents of children with cleft lip and palate.
  • Systematic evaluation of existing YouTube videos to determine their alignment with parent-defined information requirements.
  • Inclusion of 24 parents of children with nonsyndromic cleft lip and palate to gather diverse perspectives.

Main Results:

  • Parents prioritize online videos that are easily accessible, reliable, relatable, and convey a positive outlook.
  • A preference exists for a series of concise videos covering age-appropriate topics throughout a child's development.
  • Existing YouTube videos inadequately address crucial areas such as hearing, dental development (dentition), and surgical interventions for older children.

Conclusions:

  • Directing families to validated online video resources can enhance access and trustworthiness.
  • Despite improvements in resource accessibility, significant unmet needs persist regarding comprehensive cleft lip and palate information.
  • Further development of online video content is required to fully support parents throughout their child's treatment journey.