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Population Data BC: Supporting population data science in British Columbia
T K Ark1, S Kesselring1, B Hills1
1Population Data BC, School of Population and Public Health, UBC, Vancouver, BC, V6T 1Z3.
International Journal of Population Data Science
|September 16, 2020
Summary
Population Data BC (PopData) offers efficient, cost-effective linked data access for research. Future plans include enhanced data access policies and advanced linkage techniques like privacy-preserving record linkage.
Area of Science:
- Health Services Research
- Population Health
- Data Science
Background:
- Population Data BC (PopData) is a multi-university resource established to support research and education.
- It provides access to de-identified, individual-level data for various research areas, including human and community development.
Purpose of the Study:
- To describe the services and infrastructure provided by Population Data BC for research data linkage and access.
- To highlight the benefits and ongoing evolution of PopData as a data provisioning center.
Main Methods:
- Utilizes a combination of deterministic and probabilistic data linkage techniques based on identifier quality.
- Employs a harmonized data request and approval process for efficient researcher access.
- Provides a secure research environment (SRE) for data analysis and management.
Main Results:
- PopData has successfully provided efficient and cost-effective access to linked datasets for numerous research projects.
- The existing infrastructure supports large-scale research initiatives, demonstrating the value of a centralized data linkage center.
Conclusions:
- PopData has proven effective in facilitating research through accessible linked data over two decades.
- Future developments include policies for research programs, reusable datasets, and advanced linkage methods like privacy-preserving record linkage (PPRL).
- Continued collaboration with data holders and governing bodies is crucial for sustained data access and policy development.
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