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The Chronic Urticaria Registry: rationale, methods and initial implementation.

K Weller¹, A Giménez-Arnau², C Grattan³

¹Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Berlin, Germany.

Journal of the European Academy of Dermatology and Venereology : JEADV

|September 18, 2020

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This summary is machine-generated.

The Chronic Urticaria Registry (CURE) is a global initiative collecting real-world data on chronic urticaria (CU) to improve patient care and understanding. Physicians are invited to join this observational registry to advance CU research and treatment.

Area of Science:

Dermatology
Epidemiology
Clinical Research

Background:

Chronic urticaria (CU) is a prevalent condition with poorly understood mechanisms and suboptimal treatment responses.
Patient registries offer valuable insights into disease epidemiology, treatment effectiveness, and healthcare quality.

Purpose of the Study:

To establish the Chronic Urticaria Registry (CURE) for enhanced scientific understanding, clinical treatment, and healthcare planning for CU patients.
To detail the registry's rationale, methodology, and initial implementation.

Main Methods:

CURE is a prospective, international, multicenter, observational, voluntary registry for patients with CU.
Data collection includes demographics, history, symptoms, triggers, therapies, and healthcare utilization.

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Physician participation is open globally, with no selection or exclusion criteria for patients.

Main Results:

As of February 26, 2020, 39 global centers joined CURE, with 35 entering baseline data for 2946 patients.
The registry represents a significant collaborative effort by the global urticaria medical community.

Conclusions:

CURE invites broader physician participation and seeks support from diverse sponsors to expand its global reach.
The registry aims to improve the lives of patients with chronic urticaria through data-driven insights.