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Severe Neurological Impairment: A delphi consensus-based definition.

John Allen¹, Maria Brenner², Julie Hauer³

¹Department of Paediatrics, Tallaght University Hospital, Tallaght, Dublin, Ireland; Discipline of Paediatrics and Child Health, Trinity College, The University of Dublin, Ireland; Trinity Research in Childhood Centre, Trinity College, The University of Dublin, Ireland.

European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society

|September 21, 2020

Summary

This summary is machine-generated.

A consensus definition for Severe Neurological Impairment (SNI) was established using an international, multidisciplinary Delphi method. This new definition aids consistent research reporting and professional communication in SNI care.

Keywords:

Consensus Definition Delphi Severe neurological impairment

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Area of Science:

Neurology
Pediatrics
Rehabilitation Medicine

Background:

The term Severe Neurological Impairment (SNI) lacks a consistent definition, hindering research and professional communication.
This ambiguity impacts consistent reporting and collaboration among healthcare professionals caring for individuals with SNI.

Purpose of the Study:

To establish an international, multidisciplinary, consensus-based definition for Severe Neurological Impairment (SNI).

Main Methods:

The Delphi method was utilized with an international, multi-disciplinary expert panel over three rounds.
Consensus was achieved through 70% agreement, with a working definition refined after international meeting presentation and parent consultation.

Main Results:

Thirty-four experts participated in the consensus process.
A finalized definition of SNI was established, describing central nervous system disorders arising in childhood with motor and cognitive impairment, medical complexity, and need for assistance with daily living.

Conclusions:

A consensus definition for SNI was successfully created through multidisciplinary, international, and parental input.
The finalized definition is expected to benefit clinical practice, research endeavors, and resource planning in the field of SNI.